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KNOWvember Webinar: A grandparent’s voice – Advocacy and support for chronic pain families
While parents are often the primary caregivers for their children, especially when he or she lives with a chronic condition, grandparents can also provide a leading role to help the grandchild once he or she has been diagnosed with an incurable disease. For Nancy Rene, whose grandson has sickle cell disease, she quickly learned the benefits her family could experience through her advocacy and encouragement. Join us for this empowering webinar for grandparents to discover how they can engage in their grandchild’s pain journey.
About the Presenter: Nancy Rene spent her career in education. She has served as a teacher of mathematics, school administrator, and math consultant for 36 years. In retirement, she works with various advocacy organizations, including Family Voices of California and Chronic Care Coalition of California. Nancy has served as a member of the Board of the Sickle Cell Disease Association of America. She regularly attends conferences on Sickle Cell Disease and is a Patient Advocate for the California Institute for Regenerative Medicine.
When:
Monday, November 19, 2018
This event has ended.
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This platform is made possible through a partnership with the Sickle Cell Disease Association of America, Inc. (SCDAA) and its member organizations. SCDAA's mission is to advocate for people affected by sickle cell conditions and empower community-based organizations to maximize quality of life and raise public consciousness while advancing the search for a universal cure.